We got the call from the neurosurgeon that Caleb's appt will be Monday April 23. I'm not sure if it's just an evaluation by the neurosurgeon or if they will be doing the ct scan while we are there also. But we should have at least the surgeons opinion on that day if not the final diagnosis.
I found, well actually a friend found it for me, a craniosynostosis support board full of parents who's children have had this and have had the surgery. So I posted a thread with a few pictures in it of Caleb with a few different angles of his head (straight on, side view, and up top view) and the first(and only so far since I just recently posted the thread) person who commented on it said that it does look like cranio to them. Now I know that you can't diagnose someone by just looking at a picture. And I guess that I was just hoping someone would say, naw that doesn't look like cranio to me, and it help ease my mind. But seeing someone who's been there and seen it first hand in their kid, say yes it does look like cranio to them, felt like a sucker punch in the gut. And now Paul's at work, both boys are already in bed for the night, and I feel like I'm either going to go crazy or have a mental break down. I just don't know what to do at this point, I feel so helpless. I'm usually really good at keeping my cool and keeping things together, but I just don't think I can for much longer. We've been through hell and back this last year with multiple things, and now having two sick kids on top of everything else that we've been through just makes me want to crawl into a hole and not come out until everything is okay again.
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